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It was Wednesday the 16th of May 2007. I was sitting up in
bed, talking to my husband on the phone, hugging myself with
cold. I moved my hand a little and felt a lump. I went ice
cold and started to shiver. Finished the conversation with
my husband, said nothing. In the doctor’s surgery next
morning. The GP said I would be seen at the Breast Care Clinic
within two weeks. ‘Try not to worry.’
In the event, my appointment was the full two weeks later,
31st May. I wanted to tell my husband face to face, which
meant waiting. That was hard. The next week I found a smaller
lump under my right arm in the bath. I guessed the GP had
already identified it, but didn’t say. Neither did I
tell my husband – he was about to go on a business trip
to the States and couldn’t accompany me to the Clinic
anyway.
A friend, a breast cancer survivor, came with me to the Clinic.
It was hugely helpful to be with someone with this experience,
and I am so glad I did not go alone. I didn’t expect
a diagnosis that day, as I knew the biopsy results would take
a bit of time. But the consultant surgeon told me immediately
following his preliminary examination, ‘You have breast
cancer. I expect the tests – mammogram, ultrasound,
biopsy - to confirm it.’ He put me on Tamoxifen, explained
that surgery was the first line of treatment and that probably
both chemo and radiotherapy would follow.
I am still grateful to him for his directness and humanity.
The first part of the waiting was over. The kindness began
as I practised telling people, ‘I have breast cancer’.
I was emotionally fragile, but I found it helped my acceptance
to articulate it.
In the end, the biopsy was inconclusive, the cells were all
DCIS (ductal carcinoma in situ), i.e. non invasive –
but we knew that wasn’t the whole picture because of
the lump under my arm. The surgery went ahead as scheduled
– a lumpectomy, a wide local excision and axillary node
removal. The primary cancer was 24mm and the lymph node lump
14mm. Grade 3, the most aggressive, but only the one node
was affected out of twelve taken. Mixed news, then. I subsequently
discovered that it is usual for pre-menopausal women to be
Grade 3. I was 45.
My oncologist told me that I am middle of the road for treatability
with no guarantees. In the receptor tests, I was weak to medium
positive for oestrogen (tamoxifen) and C-erb B2 strongly positive
(herceptin). The others were negative. I was advised to have
chemotherapy and given a choice of drug treatment cocktails:
6 x TAC or 4 x FEC (fluoruocil, epirubicin and cyclophosphamide)
and 4 x T (docetaxol). I opted for the latter, on the basis
that my consultant indicated that outcomes were better for
those with my profile. Logical given that the drugs work in
different ways and would allow more bases to be covered. (Already,
according to my consultant, the data are suggesting that 3
x FEC and 3 x T is in fact as effective as 4 of each. How
quickly things move on.) Side effects and length of treatment
were not a consideration. Six weeks of radiotherapy would
follow.
I have not wanted to study the stats – as an individual
they’re meaningless to me - just to focus on keeping
myself as well as possible for as long as possible. No reason
to turn my face to the wall – in fact lots of reasons
not to.
At present, as my consultant puts it, there is no evidence
of recurrence.
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